born on March 27th 1974 in the city of
Switzerland (Europe). In his teenage years, in the winter of 1991, he was
confronted to long-QT syndrome for the first time. After having passed
unconscious three times in a ski camp, Jon was brought to the hospital of
Chur (Switzerland) where a cardiac arrest occurred.
After this dramatic event, he
had to do a couple of tests till the diagnosis was brought to him: The
doctors told him that he was suffering from long-QT syndrome (LQTS).
Jon quickly had to
experience that LQTS is little known in Europe. Looking for further
information about LQTS, he soon ran into limits.
That is the reason why in
1997 Jon started the internet project 'European Long QT Syndrome Information
Center' (now QTsyndrome.ch), teamed by two friends of his (both are not
affected by LQTS) and his youngest brother. The goals of QTsyndrome.ch are
to collect and provide actual information about the disease.
Jon is an editor in economy
and working for the 'Berner
one of Switzerland's biggest national newspapers.
Pascal D. M้roz, Webdesigner:
Pascal was born on March 5th 1975 in Biel-Bienne, Switzerland. He is working
as a webdesigner for a
in Biel. He is an experienced diver.
Sersa, Information Broker:
Andr้ was born on July 10th 1973 in Biel-Bienne, Switzerland. He is working
as a librarian.
ฉ 1997 - 2007
by QTsyndrome.ch. All rights reserved.