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Kat
Username: Kat
Registered: 10-2007
| | Posted on Wednesday, October 31, 2007 - 09:53 am: | |
Our son turned 18 years old in the beginning of August, and had a cardiac arrest on the 26th. Jesse was down about 5-10 minutes and by the time paramedics arrived, he was pulseless and apneic. The initial EKG revealed Torsades for which he was shocked and subsequently had Asystole and more V-tack before converting back to sinus rhythm. He was intubated and transferred to a hospital. He was in a coma for 3 days on life support, and they revealed that Jesse's heart was not positioned but up and to the right under his ribs. Making this difficult to see by sonogram the bottom chambers without pressing deeply up and under his rib cage. They noticed that when the life support machines blew air into his lungs, his heart was being squeezed at the same time. But no causing a major effect on the heart. He under went and ICD, but two days after he developed a major episode of thrombosis of the left basilic vein, and white count up to 18,000. Jesse's past medical consist of, Prolong QT Syndrome, Cardiac arrest, Recent ICD placement, Seizure disorder (unexplained) mild developmental delay (processing) attention deficit disorder, and closed head injury secondary to a traumatic event. Jesse first seizure episode was in March 29, 07. He passed out and fell nine feet from a scaffolding here at the house. He never made it to the top. My question here is: I have a young man here who I do have temp legal guardianship, I have helped him with everything a mother can do, I have even helped him establish SS and SSI. I do not have any control when it comes to getting him to understand that his health needs to come first. He is back in our small rural town hanging out on the streets. He is not a bad boy, but he is tired of us, and helping him. We have a specialist for his syndrome coming up here on the 15 of Oct. Now I am not even sure if he is going to that. He just told me after today helping him with getting him back in school (IEP Resources, Specialist, etc. that he now does not want to attend school any longer. He got so made at us he called a friend to pick him up and now he is gone. Since his Cardiac arrest, this is the first anger episode that Jesse has had, and I blame myself trying so hard to keep him safe at home. Now He is gone, and he left upset. How and what do I do now? A few weeks have passed. I have been able to obtain legal guardianship for medical and financial for Jesse, but I can’t seem to do anything for him as in helping him get off the streets. Jesse is so stressed out, that counseling, and the police have not helped here in protecting Jesse from himself. He is not suicidal, just confused, and Jesse is not thinking right. He jumped from our two-story balcony in the house to attack his brother. He kicked out our stain glass window on our front door. The deputy tried to find him for a safety and welfare check to no avail. I searched all day, and finally found him. Gave him his medication for another day, and told him to please come home. He has so much stress that he claims he is not going to live long enough so he might as well go out and live. But the truth of the matter really is here, he needs help and he is refusing it. He is walking around town with a broken hand from punching a wall until he could not punch it anymore. I need help, I am pleading for someone to take my son off the street and get him psychologically evaluated. He has been in so much confusion for so long, and now we think it all had to do with Long qt syndrome since a child. Please help us in Hayfork California we are all in a foremost brutal crisis.
Worried mom Kat Andrews, albeit, I am trying my best to lie this at the Lords feet. |
Bionic Roadrunner
Username: Bionic_roadrunner
Registered: 08-2006
| | Posted on Wednesday, October 31, 2007 - 09:41 pm: | |
Wow! This is the most difficult situation and I am not qualified to answer your questions.
This website has been very quiet but I hate to ignore you.
This is only some suggestions from a mother...
First you want to make sure he takes his medicines. This is very important. Is there anyone he trusts that he could talk to? A school counselor, a church or youth minister?
Could you contact one of his friends and explain to him or her the gravity of the situation. They in turn might be able to convince him to come back home. Adolescents often listen to their peers.
Does he like any of his doctors? One of them might be able to call him and talk to him.
I hope you find a solution. Good luck to you and your son and my very best wishes. |
Kat
Username: Kat
Registered: 10-2007
| | Posted on Thursday, November 01, 2007 - 04:06 am: | |
Thank you, and I understand how difficult this unfortunate situation has become. We have a young adult who is completely in denial. Today, Happy Halloween by the way, Jesse's defribulator went off four times. He was riding a friends bicycle back from a store, approx. 3-4 miles (Mind you we are in a rural area). Although, Jesse flagged down the local fire cheif next to our local high school, he had two more theropies infrom of the cheif. The Cheif brought Jesse to the local ambulance less than a mile away, and immedialty put him on monitors and called us. I and his emt brother brought his medtronic reader and then he did the reading and it was sent to his cardiologist. The cardiologist found that although he had four shocks they were not due to an abnormal rythmn, but the setting was to low on the ICD. Jesse, was told by the paramedics, doctor, that he needed to go home and do nothing but rest. When the conversation was over, and he gave the phone to the paramedic, she explained that when Jesse coughed he get a V-tach. (that is a result in the heart being shocked). Jesse usually is pacing, so this is our first episode of this type of theropy. One that Jesse has been so worried about, the fear of not working. Jesse stayed in town, he refused to go home until he had Halloween. I called to see how he was doing around four tonight and he said he was fine, and no other incidences. He told me, I just want to live. Jesse has been in counceling for 8 weeks now, and he has refused to go the last two times. This obsession with this girl is out of control. The mother is ready for a restraining order because he is now stalking. I have a feeling this young man, our son, is going to wind up in jail, or somewhere he just really does not need to be. I think group theropy with other teens and young adults like Jesse is what our son needs the most right now. All the people in this little town keep telling Jesse he needs to go home, even the young man he hangs out with now. But Jesse is refusing to listen. Jesse has been problematic since a child, I am worried about him, but I know in HIS time he will come to, or he will fall hard. The dread of not knowing is awful for parents. This unknown has been working against us for so many years. I have done all I can, this is up to him know. With all his disabilities, I know he still knows right from wrong, albiet, I don't think anymore that he cares.
Kat |
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