|Posted on Sunday, January 04, 2004 - 02:50 am: |
I have had alot of the symptoms that everyone describes but there are a few that I have had for as long as I can remember. My doctor just looks at me and pats my hand when I ask if this is normal. Do any of you have trouble keeping a watch working on your wrist. I can wear a watch for about a month and it just stops. A watch specialest said my electrical curents in my body must be sending a uneven rhythem and it messed up my watches rhythem. My watches also stop for about 45 min. after I black out. I am now unable to wear a watch at all. I have had chest pains and even called 911 once with no diagnoses given when I visited my doctor the next day.
I have not been diognosed with QT Syndrome but I do plan to switch doctor and ask to be tested.
Dr. Jorgen Kanters
|Posted on Sunday, January 04, 2004 - 11:12 pm: |
Long QT can definitely not make your watches to stop.
|Posted on Friday, April 07, 2006 - 05:20 am: |
My daughter, within the last 6 mths , i guess i could say, has complain of rapid heartbeat all of a sudden. In the middle of the night they would wake her. She'd be sitting watching t. v. and she'd run and let me know , cause she can feel them, and feels that she can hear them. I put my hand over her chest and sure enough they feel fast. I took her to our family doc but they too called back and said everything is ok. I understand after watching primetime tonight , not everyone knows of LQTS, is there any further steps I should take. She's never fainted or passed out, and of course I don't want to wait for the worse.
|Posted on Friday, April 07, 2006 - 06:08 am: |
My older sister and I have racing heartbeats. I will be sitting there and the doorbell or phone will ring and when I get up I can feel my heartbeat in my "neck", like it is coming out of my chest. I get extremely light headed, and sometimes my hearing diminishes. I have only fainted once when I was 7 (I was standing and my friend was curling my hair- we assumed I just had my knees "locked" for too long). I work at night as a nurse and when I am tired my heart will do the same thing- the flutter at the base of my neck, the feelling as if my heart is going to come out of my chest. My sister on the other hand has had ECG monitoring- haltering, etc. At times, she has a resting heartbeat of 150, but the doctor just says it is stress. I am overweight but have had the same symptoms since I was a child. My sister has also had this since childhood. I have two other sisters who are fine. Please help! No one else seems to listen!
|Posted on Friday, April 07, 2006 - 08:34 am: |
I haven't ever had a lot of what people are describing in this "blog". What I do have is a rapid heart beat with a low pulse rate and sweating. These episodes can occur while physically active or at complete rest. When the episode subsides there is like a sudden rush of blood to my head. It is as if my heart is does two beats up there. Is this LQTS or something else?
|Posted on Friday, April 07, 2006 - 03:04 pm: |
lylas you need to take your daughter to a specialist. My niece died 3 years ago at the age of 22 because the doctors didn't take her symptoms serious. I'm so glad that primetime air this I just wish they would have used a whole hour there is so much more to talk about this
|Posted on Friday, April 07, 2006 - 03:55 pm: |
I just happened to be flipping through the channels and caught the story as well. I had a stress test a couple years ago and it was 'normal'. All doctors say that I am healthy and that my rapid heartbeat can be attributed to my exercise routine. I am beginning to wonder if I have this syndrome though. I have never fainted, but there have been times I have been light headed or see stars (not often) but I do get the feeling where my heart will beat out of my chest and up into my throat and I will just be laying in bed or sitting in a chair. I also had a murmur when I was very young. I wonder if I am just exaggerating things or if this is really something I should have checked out again...
|Posted on Friday, April 07, 2006 - 06:04 pm: |
I saw the show last night too. I posted a message on the survival site. I didn't see this discussion until after I posted mine. I have questions. Could someone read mine and if you have any advice that would be great. It sounds like I have some of the same questions.
|Posted on Friday, April 07, 2006 - 09:23 pm: |
I have noticed a lot lately that I will have a weird feeling. It's hard to explain. It feels like I have too much electricty in my body. It's a very odd feeling like electricty is pulsing through my body. It only last 5 sec. they are a 2-5 min. apart. I also fainted twice after I gave birth 4 years ago. I have heart flutters from time to time. My dad died at age 48 from a massive heart attack!
Dr.'s think I am CRAZY. Just wondering if anyone else has had this "electricty" feeling? Could it be QT? Any advice will be appreciated.Thanks
|Posted on Saturday, April 08, 2006 - 01:30 pm: |
alley, I've never heard of that feeling but since your dad died at a young age thats something to look into. And if a DR thinks that you are crazy you need to find another doctor.
|Posted on Saturday, April 08, 2006 - 08:14 pm: |
I get that "electricity" feeling! I tried to describe it to the cardiologist (who just looked at the ceiling)! To me, it feels like a random pulse of electricity shooting through my body, like a super speedy electric mosquito on the inside. (? hard to describe fersure?) When I was diagnosed with "pseudo seizures" it was a part of my "aura" at times. I am now diagnosed with Long QT... I notice, now that you mention it, since I got my ICD in 10 weeks ago I have not noticed it since and it was a common feeling for me.
Interesting you should mention this. I too would like to know if people get this feeling.
|Posted on Monday, April 10, 2006 - 06:54 pm: |
I saw the show on Prime Time and it scared me pretty bad. I was put in the hospital in february because I passed out while driving. This has happened before. Sometimes I wake up at night with my chest just pounding so hard that it affects my breathing as well. I don't know if this is LQTS or not. But for some reason it is getting worse in the past few months. This is what happens when is gets really bad. I feel fast thumping in my chest,then I feel numb, then tingle all over,then I feel the blood rushing back into my head and its very painful. The last time it made my eyes bloodshot and gave me a headache that didn't go away for a couple of hours. My doctor said I have a heard arrythmea and my blood pressure gets really high and thats when I pass out. After watching the show on tv last week I am wondering if maybe I have this syndrome. Aslo, it never happens just once, usally dozens of times and it eventually goes away after a few hours.
|Posted on Monday, April 10, 2006 - 10:30 pm: |
SOOOOOOOO glad to know that I am not Crazy, and that someone else has had this feeling. Shelia how did you get your DR to understand how and what you were feeling? Thanks
|Posted on Tuesday, April 11, 2006 - 12:11 am: |
I don't think the Doctor did understand what I was talking about. He made his diagnoses based on the ECG and other observations. I think he thought I was a little wierd when I was talking about "electric zooming mosquitos." I find it interesting that you mention the feeling and AM interested in others opinions... Don't really know if or how much it is related to LQTS. Just something that I think is worth observing...
|Posted on Tuesday, April 11, 2006 - 06:56 am: |
|Posted on Thursday, April 13, 2006 - 04:21 am: |
Hi, I didn't really know where to post my question but after seeing that primetime segment my husband was worried that I may have this problem so I looked it up and found this messageboard. I have fainted quite a few times in my life, most often after jumping up in the middle of the night suddenly. It seems I have about 30-45 sec between jumping out of bed and the "blackout" feeling coming on. If I lay back down before I totally pass out sometimes I can fight it off. The fainting spells also are accompainied with rapid heart beat which I always figured came with the jumping up suddenly. The sound of the phone ringing in the middle of the night or any loud noise at night ALWAYS wakes me with a huge start and my heart beats rapidly. I have never had these symptoms while being active...sometimes just a tight chest which I thought was exercise induced asthma (self-diagnosed). I am a health professional and have never heard of this. Oh and my mother does the exact same thing if she wakes up suddenly in the middle of the night. When I was little she could make it from her room to my room if I woke up scared and then she'd have to lie down in my bed b/c she was going to faint. Please Please let me know if this sounds like LQT. I have had one EKG after fainting in a hospital (visiting a friend) and it came back normal.
|Posted on Thursday, April 13, 2006 - 01:02 pm: |
I am not a doctor, but I have LQTS and my symptoms were exactly like yours. Get a copy of your EKG and go see an electrophysiologist (cardiologist who specializes in the heart electrical system. Have him measure your QT length.
Take care and best wishes.
|Posted on Thursday, April 27, 2006 - 04:10 am: |
Thank you Roadrunner for the answer. It wasn't the one I wanted but I did expect it..always thought I was a little weird for passing out so easily at night!
|Posted on Thursday, April 27, 2006 - 04:16 am: |
PS: Can you tell me any other good sites to look at that may answer some of my questions?
|Posted on Thursday, April 27, 2006 - 07:04 am: |
Check out LongQT@yahoogroups.com. or go to yahoogroups.com and then go to "my groups" then to "ONG QT". You will have to register but it is free and about 400 individuals and some nurses on there, much support and fun people!
|Posted on Thursday, April 27, 2006 - 10:24 pm: |
Also, check out www.sads.org
Meanwhile, you should not have a phone in your room and get an alarm which will wake you up with nature sounds at a very low level.
Don't give up, you need to find out what is going on and have that QT checked.