| Author | Message | ||
     Savina Username: Savina Registered: 04-2007 |
Our family was diagnosed with LQT in 3 members 2 months ago. My husband (46 years, QTc 630), my youngest son (12, QTc 620) and my middle son (15, QTc 580). The former two obviously have silent genes with no problems whatsoever, but after finding the proband in our middle son they are still under investigation. The middle son has had a number tachycardias lately, lasting for up to 1/2 hour (heart rate up to 220). So the cardiologist decided for a 48-hour holter monitoring which showed (beside LQT) the mean HR 71 (he is on beta blockers already) and: 40 monomorphic ventricular extrasystoles, 1900 isolated supravetricular extrasystoles, 2 short atrial ectopic tachycardias. During this monitoring the time with prolongued QT was 17 % (when monitored before getting beta blockers, this time was 45 %). He also has broad based slowly generatin T waves. He never experienced a syncope or heart arrest. We are wainting for genetic test results, which will take some time. I wonder if there is anybody who could tell us, what are the normal procedures in a case like this, where we have another complication on top of LQT. (ablation, ICD,.....) Thank you for your advice. | ||
| Diane Username: Diane Registered: 11-2006 |
Hi Savina, This message board is not that active anymore. There is a group through Yahoo that would probably be able to give you some good advice. http://health.groups.yahoo.com/group/longqt/ Just register a yahoo account and you will be very happy with the group. They are a great bunch of people and the message board is active on a daily basis. I know for sure that there are a couple people with problems similar to yours so they would be better able to help you. Hope to hear from you soon on yahoo groups. Diane |