| Author | Message | ||
     Bionic Roadrunner Username: Bionic_roadrunner Registered: 08-2006 |
Kristin, Beta-blockers "block" the effects of adrenaline on the body's beta receptors. Some doctors prescribe them for anxiety or stage fright. So they do help during emotional time to keep the anxiety down. However, if your son is so upset about a test that he might pass out, then I would talk to the doctor about it. Has he had genetic testing? Knowing his LQT type will help in chosing his treatment. You may want to contact Dr Michael Ackerman at the Mayo Clinic in Rochester, Minnesota to ask for his help. http://www.mayoclinic.org/bio/10494715.html He is a wonderful pediatrics cardiologist and one of the top expert in LQTS in the States and very dedicated to his work. I know how difficult it is for a mother in this situation, but make sure you do not show him your worries or he will in turn worry. At this point, it is probably harder on you that it is on him. One thing you want to make sure is that he keeps taking his medicine very regularly. Some adolescents decide that they don't need to any more when they are doing so well and get in trouble that way. Take care and don't hesitate to ask more questions if you need to. | ||
| Kristin Username: Corbinlee Registered: 11-2008 |
Thank you for your responce. I have been fortunet that with Physical Activity restrictions and a beta blocker medication my son has done well for 5 years, however my concern is how it will be as he goes into the teenage years, when emotions, stress, school all become harder for him. I'd like to learn about how to help him to deal with all of those things so that the triggers will be less likly to effect him. How can i prevent a Math test causing him to pass out or even worse..... | ||
| Bionic Roadrunner Username: Bionic_roadrunner Registered: 08-2006 |
Hi Kristin, Your son could have a perfectly normal life with a few precautions. Usually most children with LQTS have to be careful with sports. No competition should be allowed, but most patients are still able to play sports. Different LQTS types have different triggers. For instance, I have LQT2 and cannot have any sudden noise while I sleep, like alarm clocks or anything that might startle me. Also, emotional upsets can trigger an episode too or swimming. I am a runner and have been running for over 30 years without any problem. I do not compete though. Everybody's LQTS is different. Some people go by with betablockers, some need a defibrillator. I have had a defibrillator since 1991 and live a very normal life. I am careful to avoid the triggers. When I have an episode, I get shocked and deal with it. I don't know if this help, but if you need more details on my case, let me know. Have you tried to contacts the SADS foundation at www.sads.org They have a forum and you might be able to get some informatioon about how children deal with LQTS. Best wishes ! | ||
| Kristin Cooper Username: Corbinlee Registered: 11-2008 |
My 8 year old son was diagnosed with long q t syndrome 5 years ago and i have yet to fully understand what it actually is, his doctor i believe is very good however she's hasn't really been able to explain to me what kinda life my son will have. I would like to talk to some one who has lived with this for many years. I would also appreciate any info and/or advise. Thank you |