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Bob
Posted on Wednesday, February 15, 2006 - 09:12 pm:   

Recently my 14 year old daughter fell during volleyball practice for unknown reasons..... The rest of the story sounds very much the same as others I have read. Both my daughters 14 and 12 have been recently tested ECG and stress test and found to have “borderline long QT” both resting tests where .440 and during exercise increased to .470. My wife tested and the findings are similar. The Dr. is sending us for the genetic testing but of course advises us not to participate in competitive sports until further notice. All three are very active in competitive sports. There is absolutely no evidence of any history in our families of any of the risk factors. My question if diagnosed “borderline QT” at the above noted ranges and no treatment is required will they be allowed to compete at the levels they are at today and continue to do so? Could they have these levels and not have long QT syndrome? With levels below .480 and no further evidence is found what are the outcomes. Any information or answers would be of great help to us during this very unsettling time. Thank you
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Dr. Jorgen Kanters
Username: Jorgen

Registered: 08-2003
Posted on Thursday, February 16, 2006 - 09:09 am:   

440 is normal for females. Exercise test is difficult to evaluate especially because the Bazett method used to correct for heart rate, has a tendency to overcorrect with fast heart rates.

Unfortunately 10% of all LQTs patients have a normal QT, which means that you could not exclude LQTS.

The best advice to give is to let your doctor discuss your case with a LQTS expert
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Bob
Posted on Thursday, February 16, 2006 - 09:57 pm:   

Dr. Kanters
Thank you for your response. We are dealing with an expert( Canada) who tells us that the genetic testing may or may not help. If the genetic testing does not ID the one of the genes for LTQ in any us and my dauhters are still diagnosed "borderline" Does borderline LQT have the same risks associated to it given no history etc. Has anyone else out there had a similar experince with "borderline LQT". Still searching for information to help better understand what we are up against. Thank you
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Dr. Jorgen Kanters
Username: Jorgen

Registered: 08-2003
Posted on Friday, February 17, 2006 - 05:45 pm:   

The risk increases with the QT interval. That means that borderline QT prolongation in LQTS is associated with lower risk than usual (but not zero!). Borderline QT in a healthy subject is probably not associated with any significant risk.

How to distinguish. As your specialist correctly state: Genetic analysis may not help. It is a difficult diagnosis
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Kelly Byers
Posted on Tuesday, March 21, 2006 - 06:40 pm:   

my daughter is 12 and has recently been discharged from the hospital with frequent pvc's called trigeminy. On one of her ECG she had Pvc's and pvc's and boderline prolonged QT of 447. The doctors are saying the ECG in fine taht it just showed frequent Pvc's and Pac's. She did not say anything about the borderline Prolonged QT. I saw this on a copy of the ECG. Is this something I should ask about? My daughter has never passed out but gets very weak and lethargic if exercising in the summer heat. They have done an echo on her and it was normal. What do you think about this?
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Kelly Byers
Posted on Tuesday, March 21, 2006 - 06:50 pm:   

I wanted to give you a little more history on my daughter. She also has history of tachycardia and is currently taking digoxin for it. The dig has brought her resting heart rate down from 120's to 130's to the 90's. She has been doing good until the frequent pvc's and pac's kicked in taking us to the hospital. Again is the borderline prolonged QT of 447 something I should ask about?
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Dr. Jorgen Kanters
Username: Jorgen

Registered: 08-2003
Posted on Tuesday, March 21, 2006 - 08:51 pm:   

You should ask your doctor. Its probably due to the high heart rate, but has to be discussed with your doctor
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Kelly Byers
Posted on Thursday, March 23, 2006 - 10:13 pm:   

After looking at my daughters ECG again I saw that it reads QT/QTc 354/447ms is that anything to worry about?
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Dr. Jorgen Kanters
Username: Jorgen

Registered: 08-2003
Posted on Friday, March 31, 2006 - 03:48 pm:   

I could just be the high heart rate (96). Try to get an ECG with a slower heart rate. Many healthy person has prolonged QT with high heart rates (but so does LQTS patients too)
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debbie
Posted on Saturday, April 01, 2006 - 04:02 pm:   

I have shown boarderline Qt and have had faints a couple as a child and one 2 years ago with near faints. Until they find the gene which Mayo is still looking my doctor told me to live as though I have it since we have had one death and one near death in my family.
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Angelacameron
Username: Angelacameron

Registered: 04-2007
Posted on Thursday, April 05, 2007 - 08:26 pm:   

My daughter is 11 year old and been diagnosed with borderline prolonged Qt. I have been researching the diagnostics but I am still afraid what will be in store for my daughter. What can I do help her?
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Diane
Username: Diane

Registered: 11-2006
Posted on Thursday, April 05, 2007 - 09:29 pm:   

Is your daughter receiving any treatment? I have 3 kids and myself all with borderline Long QT and my kids are all on beta blockers. Are you seeing an Electrophysiologist or just a regular cardiologist? An EP is better qualified to diagnose and treat Long QT.
Keep researching, knowledge is power when it comes to Long QT Syndrome.

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