| Author | Message | ||
     matt |
I am 25 year old male only symptons palpations. Never blacked out. Had recent ecg which read qt403 and qtc 466 at eighty beats per minute. The cardiloligist who is experianced in long qt said my corrected value was 440 and not what the computer said. Can the computer get it wrong ? I have since had exercise test which he said was fine. please help me.. | ||
| Cliff |
Take a look at this sites faq page http://www.qtsyndrome.ch/faq.html. It is very informative and gives you the answers you need. Hope that helps. | ||
| Dr. Jorgen Kanters Username: Jorgen Registered: 08-2003 |
ECG machine calculation is worthless. The measurements has to be performed by the cardiologist. | ||
| victoria |
I don't believe the ECG machines are worthless. If you think this then how many other doctors feel they are and are not taking it serious. This is what I mean. A doctor sees an ekg that is a little high so he thinks well I don't think the machine is right so over looks it. Doesn't send it to a cardiologist. A week later that patient dies from Long QT and why because he thought the machine was worthless. Why have an ekg done if you doctors think they are worthless. I wish my daughters doctors would have taken her ekg serious because maybe she would still be here. my Ekg calculatin was right on. Machine said 700 for QTC and they measured it to that also. That is the problem today with medical. Some doctors just don't take things serious enough. I was sent home with a QTC of 700 and a week later I was put back into the hospital and later that day went into torsodes. I don't call that good medical. I tell every one now to be their own advacate when it comes to their medical becasue you just can not trust all doctors. | ||
| Bionic Roadrunner |
Victoria, I think you are misinterpreting what Dr Kanters said. He means that the cardiologist should not blindly trust the machine but do his own calculation to make sure that it is right. | ||
| Victoria |
I didn't misunderstand him. He said ECG machine calculation is worthless. They are not worthless. Yes the machine can be wrong but so can doctors. I understand what he said on that. Yes they should measure it also but a machine can be right. Ours where right. What happens if the doctor measures wrong but the machine was right? | ||
| Dr. Jorgen Kanters Username: Jorgen Registered: 08-2003 |
ECG measurement are worthless in a clinical setting. 20% of my Long QT patients have normal QT interval measured by the ECG machine. I can not live with that 20% of my patient are misdiagnosed. I always measure all my QT intervals myself. The huge problem is doctors who not are able to measure QT intervals. Since ECG machines are not good enough, the only solution is referral to a qualified doctor experienced with LQTS | ||
| Victoria |
What about those that never tell the patient they had an abnormal ekg. this happened to us and my daughter died thanks to the stupid doctors who didn't believe the ekg. This was not just one doctor this was several. It took my daughters death for us to know we had long QT. Did they diagnose this no I did. And how did I do this. I read her ekg and mine that said prolonged QT. The QTC measurment being 500 or more. The machine was right so it was not worthless. Thank god for this abnormal ekg because if I hadent looked we would not know to this day why my daughter died or that we had long Qt in this family until I or someone else in my family would have died. If I would have died they would have thought it was epilepsy. Being misdiagnosed for over 20 years with epilespy. A drug I didn't need that destoyed my bones. When those doctors saw we had abnormal ekg's and read prolonged Qt they should have told us and sent us to a cardiologist but they didn't say or do anything and my daughter payed the price and I am paying the price the rest of my life now for their mistake. I am bitter and I think I have every right. I tell everyone to be their own advacate for their medical because so many doctors dont read their patients charts. I caught a couple of doctors that have done this. I am not saying all doctors are bad becasue there are some really good one's out there. I am glad you measure the QTC of your patients but I still believe the messurments are not worthless. I think any doctor that runs a ekg should have better understanding of them. Yes it is better to measure to make sure they are right or wrong. Long QT can hide and I guess we where lucky it didn't in us. It was plain and simple it showed in our ekg's but no one took it serious. I have heard of doctors saying the ekg is ok so they say the patient is fine but he really isn't. But never runs another one. As you know Long QT doesn't always show on an ekg. Several should be taken along with other tests and yes they should also hand measure along with the machine measuement. I agree with you on measuring but I will never agree that machine measurment is workless. | ||
| Dr. Jorgen Kanters Username: Jorgen Registered: 08-2003 |
If the machine said prolonged QT and your doctor did not remeasure the ECG then the problem is the doctor. My point is that a doctor should not trust an ECG machine but measure him/herself. If abnormal then the patients should be referred to a specialist | ||
| Victoria |
The problem was the doctor along with about 4 other doctors. That is what is so sad about my daughters death. I diagnosed it but not till after my daughter died and it was plain and simple that it showed we had long QT and I dont' have that PHD but I diagnosed it. SAD | ||
| Dr. Jorgen Kanters Username: Jorgen Registered: 08-2003 |
I am very sorry to tell you that I fully agree with You. There was a study recently published that evaluated how doctors measured the QT interval. It was very disappointing. Only experinced Long QT doctors performed acceptable, not even cardiologist. My critique of ECG machines does not nessecary means that doctors are much better | ||
| Jmac |
Point made on all counts, machines can be wrong, some of mine were too. Doctors can be wrong, some of mine were too. I think it is all very sad. Ultimately, it is your life, take charge, get someone who has LOTS and LOTS of experience in LQT patients, not just a few. There are a few specialists in the US and some in Europe as here on this site. SADS have list of doctors that can review your ECG and there is a link on this website also for free ECG evaluation. You can exercise caution until you find out positively. Jmac |