|Posted on Sunday, May 07, 2006 - 04:56 am: |
I have LQTS since teens and I also have uncontrolled coronary spasms. I have an ICD for the LQT. I was diagnosed with coronary spasms last summer with heart cath and ST elevation on my ekgs. My QT goes as prolonged as 630 on resting ekgs. I can't take the beta blockers because of the spasms. I take long acting nitrates, (Imdur 60 mg) and calcium channel blockers (Norvasc 5 mg). I also carry NTG and have to take it quite often because of the spasms. I'm only 43 years old. I fear for my life every day because I have had several syncopes before the ICD was put in and I also can't seem to get the coronary spasm under control even with all of the medication I take.
How dangerous is the combination of these 2 rare things together? I am considered high risk for both of these problems. My dad, brother and all of my aunts and uncles died suddenly, some of them was probably with LQT and some were positive for coronary artery disease also.
I can't go to the ER everyday with this because they will keep me for several days until I'm stable and then I come home again and end up back in the hospital again. I'm trying really hard to deal with it at home. I sometimes take a total of 10 nitro tabs a day at different times.
I know that your interest in not coronary spasms but since I also have LQT do you have any suggestions that might help my doctors get this under control.
I would really appreciate some help.
Dr. Jorgen Kanters
|Posted on Tuesday, May 09, 2006 - 11:27 pm: |
As far I know there is no connections between LQTS and spasm angina. Unfortunately having one disease does not protect against most other diseases.
In my opinion you should be treated as other spasm angina patients.